Hayley Update

I am home early from church with H. She is not doing so well today, only made it through most of Sacrament meeting. Last night she threw up a little bit and there was some blood. Not much, but still... They have upped her prednisone again (drat!) and doubled the two stomach medicines she is on. She is now on the highest dose for adults. We will see if that helps. Friday at the dr her oxygen was at 88. At 87 her dr admits to the hospital for supplemental o2. What a roller coaster ride! Her good moments are starting to happen, and getting longer, so there is light at the end of the tunnel. Her iron levels are low, so the dr told her to eat more red meat. That is normally not a problem for our little carnivore, but lately she hasn't had much of an appetite for anything! The jaundice looks a little better, and we are glad the mono is gone. Now if we can just get her nosebleeds down from 4 or 5 a day to just 1 or 2, we can concentrate on her HSP, which is the dratted disease that started this whole mess! I wish I could take away the stomach pain, I think that is the worst of this all for her. That's why they doubled the meds, but so far it's not helping. Where is House when I need him?